Fibrodysplasia Ossificans Progressiva
A joint initiative by ECTS, ICCBH and supported by IFOPA
Live Webinar: 23 April 2020, 4pm CET
This webinar is supported in the form of a sponsorship by Ipsen. The content has not been influenced in any way by its sponsor.
Date & Time: 23 April 2020, 4pm CET
Featuring Marelise Eekhoff and moderated by Bram van der Eerden
Costs: Live webinar is free for ECTS members and non-members, but a registration is required. Recordings are accessible to ECTS members only.
- 5 min welcome & introductions
- 35 min presentation
- 20 min Q&A
Featuring Marelise Eekhoff
Marelise Eekhoff is an internist-endocrinologist at Amsterdam UMC, the Netherlands and is working as a principal investigator and board member at the Amsterdam Bone Center specialized in various rare bone diseases. Since 2015, she is heading the Amsterdam Expert Center for FOP (https://www.vumc.com/departments/fop-amsterdam-info-research-and-trials/fop-research-amsterdam-umc.htm). She is also internationally active as a representative of the European FOP consortium, board member of the International Clinical Council (ICC) on FOP and member of the International IFOPA FOP Registry Medical Advisory Board.
Marelise is together with a specialized multidisciplinary team involved in several clinical trials, as the Regeneron LUMINA 1 trial, to treat patients from various countries in Europe. Her collaborative efforts with other European teams was recently awarded an Innovative Medicine Initiative grant (STOPFOP) to perform a clinical trial on the use of Saracatinib to treat FOP.
Moderated by Bram van der Eerden
Bram van der Eerden studied Biology in Utrecht (the Netherlands) and received his PhD in 2002 in Leiden (the Netherlands) working on the hormonal regulation of growth plate cartilage. Since then, he has been working within the department of Internal medicine of the Erasmus MC in Rotterdam on the role of calcium channels in bone and is now mainly involved in the functional characterization of novel compounds/genes/pathways that are anabolic to bone, using in vitro and in vivo models. Currently, he is group leader of the laboratory for Calcium and Bone Metabolism of Internal Medicine at the Erasmus MC. Bram has (co)-authored >50 peer-reviewed papers, has been board member of the Dutch Calcium and Bone Metabolism Society (NVCB) for 6 years and is now in the Bone networking group of the Dutch Society for Endocrinology. He was co-chair of the IBMS young investigator committee and is currently chairing the ECTS Webinar Committee. He has been involved in a number of international projects, including an ongoing Horizon2020 Marie-Curie Staff Exchange project (RUBICON) focusing on the molecular pathways in connective tissue diseases. His research group consists of 2 senior scientists, 1 Post-doc, 4 PhD students and 2 technicians.