• Home
  • MyECTS
  • Become a member
  • Contact us

Ectsoc

Ecstoc.org

MENUMENU
  • About
    • Mission & Vision
    • Governance & Transparency
    • Board of Directors
    • Annual General Meeting
    • Committees and Action Groups
      • Executive Committee
      • Communications Committee
      • Community Engagement Committee
      • ECTS Academy
      • Education Committee
      • Clinical Science Committee
      • Research Committee
      • Scientific Programme Committee 2022
    • ECTS Team
    • Membership
      • Individual Membership
      • Corporate Supporters
      • Join us
      • Affiliated Societies
  • ECTS 2023
  • Events
    • Upcoming Congresses
    • Past Congress
    • ECTS Academy Charity Event
    • ICCBH
    • Events
  • Grants & Awards
  • Education
    • Education Resource Center
    • Clinical Training Course in Metabolic Bone Diseases
    • ECTS-Mellanby Training Course
    • Bone Muscle & Beyond Webinars
    • East-meets-West Online Symposium
    • Rare Bone Diseases Webinars
    • PhD Training Course
    • Calendar ECTS Educational Events
  • ECTS Academy
    • About the ECTS Academy
    • ECTS Academy Members
    • Call for Applications - Basic Scientists
    • Call for Applications - Clinicians
    • ECTS Academy Activities
      • NI Conference Program
      • ECTS Academy Webinar Series
      • ECTS Academy Mentoring Options
      • ECTS Academy Charity Run
    • Visit the ECTS Academy website
  • News
    • ECTS Newsletter
    • News
    • Press Release
    • Image Library
    • Video Library
    • Job Advertisements
You are here: Home / Education / E-learning / ECTS Webinar Series Bone, Muscle & Beyond / Webinar Series Rare Bone Diseases: Hereditary Hypophosphatemia

Webinar Series Rare Bone Diseases: Hereditary Hypophosphatemia

6

Live Webinar: 20 October 2021, 4 pm CET 

Organised by ECTS

Sponsored by Kyowa Kirin & Ipsen

Date & Time: 20 October 2021, 4 pm CET

Featuring Signe Beck-Nielsen, and moderated by Richard Keen & Ariadne Bosman

Costs: Live webinar is free for ECTS members and non-members, but a registration is required. Recordings are accessible to ECTS members only.

Format:

  • 5 min introduction
  • 25 min meet-the-expert presentation
  • 30 min Q&A and Discussion

Learning Objectives:

  • To understand the genetic and molecular background of HHPR
  • To be able to understand the natural history of HHPR
  • To have knowledge about the treatment options for HHPR
  • To have knowledge about best practice for follow-up of adult patients with HHPR

 

ME Certificate for the On-Demand Attendance

New in the ECTS Rare Bone Diseases webinar series is that ff you were not able to join the day of live event, you can now watch the webinar on-demand and claim the CME credits.

To claim your CME Certificate for on-demand viewing:

  • Please complete the feedback survey related to the on-demand event you attended
  • https://www.surveymonkey.com/r/6V9Y6WM
  • Once completed we will send you the certificate by email once every month untill January 27th 2022
Watch on demand

Featuring Dr. Signe Beck-Nielsen

Graduated as Medical doctor from University of Southern Denmark in 2002.

Defended the Ph.D. thesis ”Rickets in Denmark – Prevalence of nutritional and hereditary rickets among children living in Denmark and characteristics of patients with hypophosphatemic rickets” in 2009. A total of 59 patients with hypophosphatemic rickets were included in clinical examinations, of these 21 were children. Studies on the bone microarchitecture, geometry and volumetric BMD using HR-pQCT in 30 adult XLH patients were completed during the post doc period. Currently ongoing studies characterizing pain, quality of life, body composition, arterial stiffness, muscle function, bone density and geometry in adult XLH patients.

Certified as Paediatrician in 2014 and as paediatric endocrinologist in 2019. Currently working as consultant at Centre for Rare Diseases, Aarhus University Hospital, Denmark.

Principal organizer of the Danish XLH Patient Association, founded in February 2018.

Has published 21 papers on rickets, 17 of these on hypophosphatemic rickets.

Moderated by Richard Keen & Ariadne Bosman

Copyright 2016 ECTS - Disclaimer - Cookies Policy - Privacy Policy - Privacy Centre - Terms of use - Contact us
This website uses cookies to improve user experience. Read about how we use cookies and how you can control them by clicking “Change Cookie Settings” or accept cookies by clicking “Accept Cookies”. Read more
Accept Cookies
Change Cookie Settings
Cookie Box Settings
Cookie Box Settings
Decide which cookies you want to allow. You can change cookie setting at any time. However, this can result in some functions no longer being available. Learn more about the cookies we use.

You can opt in by clicking on the cookie types below:

  • Block all
  • Essential
  • Functionality
  • Analytics
  • Advertising

This website will:

  • Essential: Remember your cookie permission setting
  • Essential: Allow session cookies
  • Essential: Gather information you input into a contact forms, newsletter and other forms across all pages
  • Essential: Authenticate that you are logged into your user account

This website won

  • Functionality: Remember social media settings
  • Functionality: Remember selected region and country
  • Functionality: Remember language version you selected
  • Functionality: Identify device you are using
  • Analytics: Keep track of your visited pages
  • Analytics: Keep track about your location and region based on your IP address
  • Analytics: Keep track on the time spent on each page
  • Analytics: Identify device you are using
  • Advertising: Allow you to connect to social sites
  • Advertising: Gather personally identifiable information
  • Remember your login details

This website will:

  • Essential: Remember your cookie permission setting
  • Essential: Allow session cookies
  • Essential: Gather information you input into a contact forms, newsletter and other forms across all pages
  • Essential: Authenticate that you are logged into your user account
  • Functionality: Remember social media settings
  • Functionality: Remember selected region and country
  • Functionality: Remember language version you selected
  • Functionality: Identify device you are using

This website won

  • Analytics: Keep track of your visited pages
  • Analytics: Keep track about your location and region based on your IP address
  • Analytics: Keep track on the time spent on each page
  • Analytics: Identify device you are using
  • Advertising: Allow you to connect to social sites
  • Remember your login details
  • Advertising: Gather personally identifiable information

This website will:

  • Essential: Remember your cookie permission setting
  • Essential: Allow session cookies
  • Essential: Gather information you input into a contact forms, newsletter and other forms across all pages
  • Essential: Authenticate that you are logged into your user account
  • Functionality: Remember social media settings
  • Functionality: Remember selected region and country
  • Functionality: Remember language version you selected
  • Functionality: Identify device you are using
  • Analytics: Keep track of your visited pages
  • Analytics: Keep track about your location and region based on your IP address
  • Analytics: Keep track on the time spent on each page
  • Analytics: Identify device you are using

This website won

  • Advertising: Allow you to connect to social sites
  • Advertising: Gather personally identifiable information
  • Remember your login details

This website will:

  • Essential: Remember your cookie permission setting
  • Essential: Allow session cookies
  • Essential: Gather information you input into a contact forms, newsletter and other forms across all pages
  • Essential: Authenticate that you are logged into your user account
  • Functionality: Remember social media settings
  • Functionality: Remember selected region and country
  • Functionality: Remember language version you selected
  • Functionality: Identify device you are using
  • Analytics: Keep track of your visited pages
  • Analytics: Keep track about your location and region based on your IP address
  • Analytics: Keep track on the time spent on each page
  • Analytics: Identify device you are using
  • Advertising: Allow you to connect to social sites
  • Advertising: Gather personally identifiable information

This website won

  • Remember your login details
Save & Close