Topic: Pregnancy in rare bone and mineral disorders
Organised by: ECTS Rare bone diseases action group and ERN BOND
Chair: Univ.-Prof. Dr. med. Ralf Oheim, Universitätsklinikum Hamburg-Eppendorf, Hamburg, Germany
Speakers: Dr. Maëlle Charpie, Dr. Claudia Finis, and Dr. Tenna Toft

Date & Time: Thursday, 15 October 2026 from 16.00-17.00hrs CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full tier members after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Register

Agenda:

Introduction (3 min)
Presentation on “Pregnancy in rare bone and mineral disorders” (35 min)
Live Q&A from the audience (20 min)
Conclusion and key messages (2 min)

Learning Objectives:

To follow…

Topic: Bugs’n’Bone infection
Organised by the ECTS E-learning action group
Chairs: Cristina Sobacchi, IRCCS Humanitas Research Hospital, Milan, Italy
Speakers: Jérôme JOSSE, PharmD, PhD, HDR, Institut des Sciences Pharmaceutiques et Biologiques – Faculté de Pharmacie de Lyon, Lyon, France
Date & Time: Thursday, 17 September 2026 from 16:00 – 17:00 CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full members tier after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Agenda:

Introduction by Dr. Sobacchi(3 min)
Presentation on “Bugs’n’Bone infection” by Dr. Josse (35 min)
Live Q&A from the audience moderated by Dr. Sobacchi (20 min)
Conclusion and key messages by Dr. Sobacchi (2 min)

Learning Objectives:

• Describing the main clinical manifestations and key bacterial pathogens involved in bone and joint infections (BJIs)
• Defining the pathophysiological mechanisms involved in BJIs
• Highlighting the various aspects of the interaction between bacterial pathogens and cells within the bone microenvironment

Topic: An ECTS paper: Denosumab for the treatment of Rare Bone Disorders in children and adults
Organised by: ECTS Rare bone diseases action group and ERN BOND
Chair: Prof. Willem Lems, Netherlands
Speaker: Dr. Oana Bulaicon-Danila, Leids University Medical Center, Netherlands and Dr. Vivian MacDonald, NIH, USA

Date & Time: Thursday, 27 August 2026 from 16.00-17.00hrs CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full tier members after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Register

Agenda:

Introduction (3 min)
Presentation on “Denosumab for the treatment of Rare Bone Disorders in children and adults” by Dr. Bulaicon-Danila and Dr. MacDonald (40 min)”
Live Q&A from the audience (15 min)
Conclusion and key messages (2 min)

Learning Objectives:

After participating in this session, learners will be able to:

1. Describe the mechanism of action of denosumab and rationale for its use in selected rare bone disorders.
2. Identify clinical and disease-specific factors that influence patient selection, treatment goals, and expected response to denosumab therapy.
3. Recognize the potential benefits, risks, and monitoring requirements associated with denosumab treatment in pediatric and adult patients, including strategies to mitigate complications during treatment initiation and discontinuation.
4. Apply current evidence to develop individualized management approaches for patients with rare bone disorders being considered for denosumab therapy.

Topic: Transplantation osteoporosis
Organised by the ECTS E-learning action group
Chairs: TBD
Speakers: Prof. Maria Núria Guañabens Gay, University of Barcelona, Spain and Prof. Dr. Pieter Evenepoel, UZ Leuven, Belgium

Date & Time: Thursday, 16 July 2026 from 16:00 – 17:00 CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full members tier after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Agenda:

Introduction (3 min)
Presentation on “Transplantation osteoporosis” by Prof. Guañabens and Prof. Dr. Evenepoel (40 min)
Live Q&A from the audience (15 min)
Conclusion and key messages (2 min)

Topic: An ECTS paper: Osteopetrosis
Organised by: ECTS Rare bone diseases action group and ERN BOND
Chair: Prof.Dr. Willem Lems, Amsterdam UMC, Amsterdam, The Netherlands and Dr. Giovanni Trisolino, Italy
Speaker: Prof. Thomas Funck-Brentano, Université Paris Cité, Paris, France
Date & Time: Thursday, 18 June 2026 from 16.00-17.00hrs CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full tier members after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Register

Agenda:

Introduction by Prof.Dr. Lems (3 min)
Presentation on “Osteopetrosis” by Prof. Funck-Brentano (35 min)
Live Q&A from the audience moderated by Dr. Trisolino and Prof.Dr. Lems (20 min)
Conclusion and key messages by Dr. Trisolino (2 min)