Topic: Achondroplasia adult management
Organised by: ECTS Rare bone diseases action group and ERN BOND
Chair: To be confirmed
Speaker: Svein O. Fredwall, MD, PhD, Medical advisor, National Centre for Rare Diseases, Unit Sunnaas, Norway
Date & Time: Thursday, 12 February 2026 from 16.00-17.00hrs CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full tier members after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Register

Key learning objectives:

• Common medical complications in adults with achondroplasia
• How can we organize care of adults with achondroplasia and what are the potential barriers
• Management beyond medical issues

Agenda:

Introduction (3 min)
Presentation on “Achondroplasia adult management” (35 min)
Live Q&A from the audience (20 min)
Conclusion and key messages (2 min)