Rare Bone Diseases Webinar Series: The EuRR-Bone registries, Why, What and how?
Organisers: European Calcified Tissue Society and ERN BOND
Topic: The EuRR-Bone registries, Why, What and how?
Speaker: Dr Natasha Appelman-Dijkstra, Leiden University Medical Center, Leiden, The Netherlands
Hosts: Prof Martine Cohen-Solal, French Institute of Health and Medical Research Paris, France & Dr Mariya Cherenko, Leiden University Medical Center, Leiden, The Netherlands
Date & Time: 13 December 2023, from 16:00 to 17:00 CET
Learning Objectives
- Learn about the registries
- Obtain knowledge about the legal/ethical issues concerned with registries
- Practical instruction on how to enter data
- Learn about the latest registry data
Agenda
Introduction by Prof Cohen-Solal (3 min)
Presentation on “The EuRR-Bone registries, why, what, and how?” by Dr Appelman-Dijkstra (30 min)
Live Q&A from the audience, moderated by Dr Cherenko and Prof Cohen-Solal (25 min)
Conclusion and key messages by Dr Cherenko (2 min)
Registration
This webinar is free and open to everyone with an interest in the field.
RegisterAcknowledgements
This programme is supported by Kyowa Kirin in the form of an educational grant. The scientific programme has not been influenced in any way by its sponsor.