Organisers: European Calcified Tissue Society and ERN BOND
Topic: Transition from childhood to adulthood in the care of rare bone diseases
Speaker: Prof Corinna Grasemann
Hosts: Prof Gavin Clunie & Dr Charlotte Verroken
Date & Time: 20 June 2023, from 16:00 to 17:00 CET

Learning Objectives

After watching this webinar, participants will learn about:

• Common challenges of the transition period for patients and for caregivers
• The needs of adolescents with a rare skeletal disorder will be discussed
• The content and requirements of a transition pathway will be presented
• An example of a structured Transition pathway including the required tools and team members will be provided

Registration

This webinar is free and open to everyone with an interest in the field.

Acknowledgements

This programme is supported by Kyowa Kirin in the form of an educational grant. The scientific programme has not been influenced in any way by its sponsor.

About the Speaker

Professor Corinna Grasemann is a pediatric endocrinologist at the Department of Pediatrics of the Ruhr-University Bochum in Germany. She graduated from the Medical school at The University of Essen in Germany in 1997. Following a research fellowship in Endocrinology at the Beth Israel Deaconess Medical Center in Boston, she trained in Pediatrics and Pediatric Endocrinology at the Children’s Hospital in Essen and at Sick Kids Hospital in Toronto, Canada.

Dr. Grasemann has a special interest in pediatric bone disorders and works with her team on rare and acquired skeletal disorders in childhood.  As work package lead in a National project, she has coordinated the development of a structured transition pathway for adolescents and young adults with a Rare Disease (https://ojrd.biomedcentral.com/articles/10.1186/s13023-023-02698-2 )