Organisers: European Calcified Tissue Society and ERN BOND
Topic: Mastocytosis
Speaker: Prof Dr Heide Siggelkow, University Medical Center Göttingen, Germany
Hosts: Dr Tiago Azenha Rama, Centro Hospitalar de São João, Portugal and Prof Morten Frost Nielsen, University of Southern Denmark, Denmark

Date & Time: 6 September 2023, from 16:00 to 17:00 CET

Learning Objectives

After watching this webinar, participants will:

• Have better knowledge of key clinical features for indolent systemic mastocytosis
• Be able to describe the bone complications of indolent systemic mastocytosis
• Improve their skills on the management of osteoporosis in indolent systemic mastocytosis

Registration

This webinar is free and open to everyone with an interest in the field.

Registration is now open

Accreditation

An application for CME accreditation has been submitted to the European Accreditation Council for Continuing Medical Education (EACCME®).

Acknowledgements

This programme is supported by Kyowa Kirin in the form of an educational grant. The scientific programme has not been influenced in any way by its sponsor.

About the Speaker

Prof. Dr. Heide Siggelkow is associate professor for Endocrinology at the Clinic of Gastroenterology, Gastrointestinal Oncology and Endocrinology, Head of the Working Group of Molecular Endocrinology and Osteology at the University Medical Center, Göttingen and Medical Director of the MVZ Endokrinologikum. She works in an outpatient clinic for endocrine or metabolic bone diseases including osteoporosis, hypoparathyroidism, hyperparathyroidism and rare bone diseases. Between 2011 and 2015, she was head of the Association of German Language Societies in the special Field of Osteology (DVO). In this position, she initiated and supported the development of the Osteologic Research Centers DVO. She has been president of the German Society of Osteology (DGO) from 2017–2019, since then she serves as vice-president. In 2017, the Intensive Course for Clinical Endocrinology of the German Society of Endocrinology (DGE) took place in Göttingen under her leadership, and in 2019 she hosted the yearly congress of the society DGE in Göttingen. Since 2018, she has been spokesperson of the German network of rare bone diseases, “Netzwerk für seltene Osteopathien NetsOs”. 2017-2020 she was member of the European Calcified Tissue Society (ECTS) Website and Social Media Action Group, since 2021 she joined the ECTS Action group of Rare Bone Diseases. Since 2020 she is member of the ESE Education committee and representative in the PARAT programme of the European Society of Endocrinology (ECE). Her basic scientific work focuses on molecular and metabolic mechanisms important for the interplay between fat and bone in primary and secondary forms of osteoporosis, with a special focus on cortisol and bone. Another main topic was the investigation of mechanisms of osteoporosis in chronic inflammatory bowel diseases. Her clinical research is now concentrated on secondary forms of osteoporosis and on hypoparathyroidism with a special focus on quality of life. invited speaker at international conferences (Gordon, ASBMR, Keystone).

Topic: The pathogenesis and consequences of having too much bone
Speaker: Prof Wim Van Hul, University of Antwerp, Belgium
Hosts: Dr Natasha Appelman Dijkstra & Dr Adalbert Raimann
Date & Time: Wednesday 31 May 2023, from 16.00-17.00hrs CET
Format: Live Webinar. On-demand recording to be available after the event

Summary

The webinar, scheduled on 31 May 2023, from 1600-1700 CEST, is designed for individuals who currently practice in rare bone diseases, or are new to the field, and are interested in gaining clinical skills in the topic.

No experience is necessary to participate, we welcome all learners!

The webinar is hosted Prof Wim Van Hul who will provide a general presentation of diseases associated with high bone mass.  Dr Natasha Appelman-Dijkstra and Dr Adalbert Raimann will lead discussions around clinical cases.  The learning format will allow participants to share their experiences and ideas on strategies to evaluate, diagnose and/or manage the patients.  The case presenter will be invited to address 2-3 questions regarding the case to the participants for discussion.

If you are a physician, clinical researcher or other medical provider, you are invited to submit a clinical case that are interesting, unusual, complex and/or controversial regarding presentation, diagnosis, treatment, or coordination of care of diseases with high-bone mass.

Submit your case

Clinical case submissions can be sent to clinicalcase@ectsoc.org outlining:

• Your Name, email address, organisation and country
• Title of the case
• Summary of the case (brief description, including issues you are facing with the diagnosis or presentation of the case. Please make sure the patient cannot be identified)
• Your central questions to be addressed to the audience (2-3)

Deadline for submission : 10 May 2023.

Submit your case now !

Learning Objectives

After watching this webinar, participants will :

• Have better knowledge about the classification of sclerosing bone dysplasias
• Have gained insight into the pathogenic mechanisms underlying sclerosing bone dysplasias
• The clinical consequences of having too much bone
• Be able to adapt their daily practice thanks to case discussions

Registration

This webinar is free and open to everyone with an interest in the field.

Accreditation

A request for accreditation has been submitted to the European Accreditation Council for Continuing Medical Education (EACCME®).

Acknowledgement

The 2023 Rare Bone Diseases Webinar Series has been supported by industry on the form of an educational grant.  The sponsors had not influence on the content of the programme.

Organisers: European Calcified Tissue Society and ERN BOND
Topic: The pathogenesis and consequences of having too much bone
Chairs: Natasha Appelman-Dijkstra, additional chair TBC
Speaker: Prof Wim van Hul
Date & Time: 31 May 2023, from 16:00 to 17:00 CET

Learning Objectives

After participating in this webinar, participants will:

• Have better knowledge about the classification of sclerosing bone dysplasias
• Have gained insight into the pathogenic mechanisms underlying sclerosing bone dysplasias
• Understand the clinical consequences of having too much bone
• Be able to review their daily practice thanks to case discussions.

Registration

This webinar is free and open to everyone with an interest in the field.

Accreditation

This live Webinar has been submitted to EACCME for CME Accreditation.

Supported by

This programme is supported by Kyowa Kirin in the form of an educational grant. The scientific programme has not been influenced in any way by its sponsor.

Organisers: European Calcified Tissue Society and ERN BOND
Topic: Melorheostosis
Chairs: Dr Natasha Appelman-Dijkstra & Dr Natalie Butterfield
Speaker: Prof Geert Mortier
Date & Time: 14 March 2023, from 16:00 to 17:00 CET

Learning Objectives

After watching this webinar, participants will be able to discuss:

• What are clinical and radiographic features of melorheostosis?
• How can dysregulation of the TFGbeta pathway cause melorheostosis?
• How can we identify the genetic cause in rare sporadic bone disorders?

Registration

This webinar is free and open to everyone with an interest in the field.

Accreditation

The ECTS webinar “Melorheostosis,” streamed live and on-demand, 14 March 2023 has been accredited by the European Accreditation Council for Continuing Medical Education (EACCME®) with 1 European CME credit (ECMEC®s).

Each medical specialist should claim only those hours of credit that he/she actually spent in the educational activity, live or on-demand.

Through an agreement between the Union Européenne des Médecins Spécialistes and the American Medical Association, physicians may convert EACCME^® credits to an equivalent number of AMA PRA Category 1 Credits^TM.

Information on the process to convert EACCME^® credit to AMA credit can be found at www.ama-assn.org/education/earn-credit-participation-international-activities.

Live educational activities, occurring outside of Canada, recognised by the UEMS-EACCME^® for ECMEC^®s are deemed to be Accredited Group Learning Activities (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada.

Sponsored by

This programme is supported by Kyowa Kirin in the form of an educational grant. The scientific programme has not been influenced in any way by its sponsor.

About the Speaker

Geert Mortier is currently Director of the Department Medical Genetics and Head of the Center for Rare Diseases in the Antwerp University Hospital. He is also Chairman of GENOMED, a research center of excellence at the University of Antwerp where he is funded by the prestigious Methusalem grant. He is full professor at the University of Antwerp and affiliated professor at the Manipal University in India. He is a Belgian-certified pediatrician and clinical geneticist. He has a strong research interest in growth diseases and genetic disorders of the skeleton. He participates in several expert networks for skeletal dysplasias and is member of the scientific medical committee and medical advisory board for several companies and agencies. He is currently coordinator of the Flemish Network for Rare Bone Disorders and International Coordinating Investigator for the Dreambird study (natural history study for achondroplasia sponsored by Therachon). His research bibliography is available at Researcher ID:D-2542-2012 and ORCID ID: 0000-0001-9871-4578