Organisers: European Calcified Tissue Society and ERN BOND
Topic: Bone pain in rare bone diseases
Chairs: Pr Kassim Javaid, Oxford University Hospitals NHS, UK and Dr Florence Figeac, Odense University Hospital, Odense, Denmark
Speaker: Pr Anne-Marie Heegaard, University of Copenhagen, Copenhagen, Denmark

Date & Time: Tuesday, 29 October, from 16:00 to 17:00 CET

Registration

This webinar is free and open to everyone with an interest in the field.

Agenda

Introduction by Pr Javaid and Dr Figeac (3 min)
Presentation on “Bone pain in rare bone diseases” by Pr Heegaard (30 min)
Live Q&A from the audience, moderated by Pr Javaid and Dr Figeac (25 min)
Conclusion and key messages by Pr Javaid and Dr Figeac (2 min)

Organisers: European Calcified Tissue Society and ERN BOND
Topic: Update in surgical Fibrous/McCune Albright syndrome
Chairs: Dr Thomas Funck-Brentano, Paris University City, Paris, France
Speaker: Dr Pieter Bas de Witte, Leiden University Medical Center, Leiden, Netherlands

Date & Time: Tuesday, 11 June 2024 , from 16:00 to 17:00 CEST

Registration

This webinar is free and open to everyone with an interest in the field.

Agenda

Introduction by Dr Funck-Brentano (3 min)
Presentation on “Update in surgical Fibrous/McCune Albright syndrome” by Dr Pieter Bas de Witte (30 min)
Live Q&A from the audience, moderated by Dr Funck-Brentano (25 min)
Conclusion and key messages by Dr Funck-Brentano (2 min)

Organisers: European Calcified Tissue Society and ERN BOND
Topic: Recognising children with Skeletal Dysplasias – Radiology
Chairs: Prof Uwe Kornak, University of Göttingen, Göttingen, Germany & Dr Morten Frost, University of Southern Denmark, Odense, Denmark
Speaker: Prof Amaka Offiah, Sheffield Children’s NHS Foundation Trust, Sheffield, UK

Date & Time: Monday, 11 March 2024 , from 17:00 to 18:00 CET

Registration

This webinar is free and open to everyone with an interest in the field.

Learning Objectives

• To understand what images to obtain
• To learn a structured approach to interpreting dysplasia skeletal surveys
• To recognise different patterns of skeletal dysplasias

Agenda

Introduction by Dr Frost (3 min)
Presentation on “Recognising children with skeletal dysplasia – Radiology” by Prof Offiah (30 min)
Live Q&A from the audience, moderated by Dr Frost & Prof Kornak (25 min)
Conclusion and key messages by Prof Kornak (2 min)

Organisers: European Calcified Tissue Society and ERN BOND
Topic: Hypophosphatasia in children
Chairs: Prof Dr Heide Siggelkow, MVZ Endokrinologikum Göttingen, Göttingen, Germany & Dr Giulia Battafarano, Bambino Gesù Children Hospital, IRCCS, Rome, Italy
Speaker: Prof Agnès Linglart, French Institute of Health and Medical Research, Paris, France

Date & Time: Tuesday, 13 February 2024 , from 16:00 to 17:00 CET

Learning Objectives

• To recognize hypophosphatasia in children
• To apprehend the multidisciplinary management of hypophosphatasia
• To manage the enzyme replacement therapy

Agenda

Introduction by Prof Dr Siggelkow (3 min)
Presentation on “Hypophosphatasia in children” by Prof Linglart (30 min)
Live Q&A from the audience, moderated by Prof Dr Siggelkow & Dr Battafarano (25 min)
Conclusion and key messages by Dr Battafarano (2 min)

Registration

This webinar is free and open to everyone with an interest in the field.

Organisers: European Calcified Tissue Society and ERN BOND
Topic: The EuRR-Bone registries, Why, What and how?
Speaker: Dr Natasha Appelman-Dijkstra, Leiden University Medical Center, Leiden, The Netherlands
Hosts: Prof Martine Cohen-Solal, French Institute of Health and Medical Research Paris, France & Dr Mariya Cherenko, Leiden University Medical Center, Leiden, The Netherlands

Date & Time: 13 December 2023, from 16:00 to 17:00 CET

Learning Objectives

• Learn about the registries
• Obtain knowledge about the legal/ethical issues concerned with registries
• Practical instruction on how to enter data
• Learn about the latest registry data

Agenda

Introduction by Prof Cohen-Solal (3 min)
Presentation on “The EuRR-Bone registries, why, what, and how?” by Dr Appelman-Dijkstra (30 min)
Live Q&A from the audience, moderated by Dr Cherenko and Prof Cohen-Solal (25 min)
Conclusion and key messages by Dr Cherenko (2 min)

Registration

This webinar is free and open to everyone with an interest in the field.

Acknowledgements

This programme is supported by Kyowa Kirin in the form of an educational grant. The scientific programme has not been influenced in any way by its sponsor.