Topic: The pathogenesis and consequences of having too much bone
Speaker: Prof Wim Van Hul, University of Antwerp, Belgium
Hosts: Dr Natasha Appelman Dijkstra & Dr Adalbert Raimann
Date & Time: Wednesday 31 May 2023, from 16.00-17.00hrs CET
Format: Live Webinar. On-demand recording to be available after the event

Summary

The webinar, scheduled on 31 May 2023, from 1600-1700 CEST, is designed for individuals who currently practice in rare bone diseases, or are new to the field, and are interested in gaining clinical skills in the topic.

No experience is necessary to participate, we welcome all learners!

The webinar is hosted Prof Wim Van Hul who will provide a general presentation of diseases associated with high bone mass.  Dr Natasha Appelman-Dijkstra and Dr Adalbert Raimann will lead discussions around clinical cases.  The learning format will allow participants to share their experiences and ideas on strategies to evaluate, diagnose and/or manage the patients.  The case presenter will be invited to address 2-3 questions regarding the case to the participants for discussion.

If you are a physician, clinical researcher or other medical provider, you are invited to submit a clinical case that are interesting, unusual, complex and/or controversial regarding presentation, diagnosis, treatment, or coordination of care of diseases with high-bone mass.

Submit your case

Clinical case submissions can be sent to clinicalcase@ectsoc.org outlining:

• Your Name, email address, organisation and country
• Title of the case
• Summary of the case (brief description, including issues you are facing with the diagnosis or presentation of the case. Please make sure the patient cannot be identified)
• Your central questions to be addressed to the audience (2-3)

Deadline for submission : 10 May 2023.

Submit your case now !

Learning Objectives

After watching this webinar, participants will :

• Have better knowledge about the classification of sclerosing bone dysplasias
• Have gained insight into the pathogenic mechanisms underlying sclerosing bone dysplasias
• The clinical consequences of having too much bone
• Be able to adapt their daily practice thanks to case discussions

Registration

This webinar is free and open to everyone with an interest in the field.

Accreditation

A request for accreditation has been submitted to the European Accreditation Council for Continuing Medical Education (EACCME®).

Acknowledgement

The 2023 Rare Bone Diseases Webinar Series has been supported by industry on the form of an educational grant.  The sponsors had not influence on the content of the programme.

Organisers: European Calcified Tissue Society and ERN BOND
Topic: The pathogenesis and consequences of having too much bone
Chairs: Natasha Appelman-Dijkstra, additional chair TBC
Speaker: Prof Wim van Hul
Date & Time: 31 May 2023, from 16:00 to 17:00 CET

Learning Objectives

After participating in this webinar, participants will:

• Have better knowledge about the classification of sclerosing bone dysplasias
• Have gained insight into the pathogenic mechanisms underlying sclerosing bone dysplasias
• Understand the clinical consequences of having too much bone
• Be able to review their daily practice thanks to case discussions.

Registration

This webinar is free and open to everyone with an interest in the field.

Accreditation

This live Webinar has been submitted to EACCME for CME Accreditation.

Supported by

This programme is supported by Kyowa Kirin in the form of an educational grant. The scientific programme has not been influenced in any way by its sponsor.

Organisers: European Calcified Tissue Society and ERN BOND
Topic: Melorheostosis
Chairs: Dr Natasha Appelman-Dijkstra & Dr Natalie Butterfield
Speaker: Prof Geert Mortier
Date & Time: 14 March 2023, from 16:00 to 17:00 CET

Learning Objectives

After watching this webinar, participants will be able to discuss:

• What are clinical and radiographic features of melorheostosis?
• How can dysregulation of the TFGbeta pathway cause melorheostosis?
• How can we identify the genetic cause in rare sporadic bone disorders?

Registration

This webinar is free and open to everyone with an interest in the field.

Accreditation

The ECTS webinar “Melorheostosis,” streamed live and on-demand, 14 March 2023 has been accredited by the European Accreditation Council for Continuing Medical Education (EACCME®) with 1 European CME credit (ECMEC®s).

Each medical specialist should claim only those hours of credit that he/she actually spent in the educational activity, live or on-demand.

Through an agreement between the Union Européenne des Médecins Spécialistes and the American Medical Association, physicians may convert EACCME^® credits to an equivalent number of AMA PRA Category 1 Credits^TM.

Information on the process to convert EACCME^® credit to AMA credit can be found at www.ama-assn.org/education/earn-credit-participation-international-activities.

Live educational activities, occurring outside of Canada, recognised by the UEMS-EACCME^® for ECMEC^®s are deemed to be Accredited Group Learning Activities (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada.

Sponsored by

This programme is supported by Kyowa Kirin in the form of an educational grant. The scientific programme has not been influenced in any way by its sponsor.

About the Speaker

Geert Mortier is currently Director of the Department Medical Genetics and Head of the Center for Rare Diseases in the Antwerp University Hospital. He is also Chairman of GENOMED, a research center of excellence at the University of Antwerp where he is funded by the prestigious Methusalem grant. He is full professor at the University of Antwerp and affiliated professor at the Manipal University in India. He is a Belgian-certified pediatrician and clinical geneticist. He has a strong research interest in growth diseases and genetic disorders of the skeleton. He participates in several expert networks for skeletal dysplasias and is member of the scientific medical committee and medical advisory board for several companies and agencies. He is currently coordinator of the Flemish Network for Rare Bone Disorders and International Coordinating Investigator for the Dreambird study (natural history study for achondroplasia sponsored by Therachon). His research bibliography is available at Researcher ID:D-2542-2012 and ORCID ID: 0000-0001-9871-4578 

Date & Time: 2 March 2022, 4-5pm CET

Organised by ECTS

Sponsored by Industry

Featuring: Stuart Ralston Chaired by Gavin Clunie & Ciro Menale

Learning Objectives:

• To be aware of the various conditions that can present with osteosclerosis
• To be aware of the clinical features and investigations that can help differentiate between different osteosclerotic disorders
• To be aware of the treatment options for individual osteosclerotic disorders

Format:

• 5 min introduction
• 25 min meet-the-expert presentation
• 30 min Q&A and Case Discussion

Costs: Live & On-demand webinar is free for ECTS members and non-members, but a registration is required.

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The ECTS Rare Bone Diseases Webinar – Sorting out Sclerosing Bone Dysplasias, 2 March, has been submitted for accreditation by the European Accreditation Council for Continuing Medical Education (EACCME®) for European CME credits (ECMEC®s).

Date & Time: 9 February 2022, 4-5pm CET

Organised by ECTS

Sponsored by Industry

Featuring: Prof. Dr. José A. Riancho Chaired by Nuria Guanabens & Cristiana Cipriani

Learning Objectives:

• To raise awareness of the presentation of hereditary skeletal disorders in adults
• To understand the diagnostic work up of patients with low alkaline phosphatase
• To know the skeletal consequences of mild hypophosphatasia in adults
• To understand the benefits and drawbacks of therapy in adult patients with hypophosphatasia

Format:

• 5 min introduction
• 25 min meet-the-expert presentation
• 30 min Q&A and case Discussion

Costs: Live & on-demand webinar is free for ECTS members and non-members, but a registration is required.

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REGISTER