Topic: An ECTS paper: Osteopetrosis
Organised by: ECTS Rare bone diseases action group and ERN BOND
Chair: Prof.Dr. Willem Lems, Amsterdam UMC, Amsterdam, The Netherlands and Dr. Giovanni Trisolino, Italy
Speaker: Prof. Thomas Funck-Brentano, Université Paris Cité, Paris, France
Date & Time: Thursday, 18 June 2026 from 16.00-17.00hrs CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full tier members after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Register

Agenda:

Introduction by Prof.Dr. Lems (3 min)
Presentation on “Osteopetrosis” by Prof. Funck-Brentano (35 min)
Live Q&A from the audience moderated by Dr. Trisolino and Prof.Dr. Lems (20 min)
Conclusion and key messages by Dr. Trisolino (2 min)

Topic: Exercise therapy on osteoporosis
Organised by the ECTS E-learning action group
Chairs: Dr. Michaël Laurent M.D. Ph.D, Geriatrics unit of the Imelda general hospital in Bonheiden, Belgium
Speaker: Dr. Belinda Beck, Professor of Exercise Physiology at Griffith University (Gold Coast, QLD) and Director of The Bone Clinic in Brisbane, Australia
Date & Time: Thursday, 21 May 2026 from 11.00AM-12.00PM CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full members tier after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Agenda:

Introduction by Dr. Laurent (3 min)
Presentation on “Exercise therapy on osteoporosis” by Dr. Beck (35 min)
Live Q&A from the audience, moderated by Dr. Laurent (20 min)
Conclusion and key messages by Dr. Laurent (2 min)

Topic: Hypoparathyroidism new developments
Organised by: ECTS Rare bone diseases action group and ERN BOND
Chair: To be confirmed
Speaker: Dr. Maria Yavropoulou, LAIKO University Hospital, Athens, Greece
Date & Time: Thursday, 16 April 2026 from 16.00-17.00hrs CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full tier members after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Register

Key learning objectives:

By the end of this session, participants will be able to:
• Evaluate new therapeutic approaches, including parathyroid hormone replacement strategies and their impact on biochemical control, quality of life, and long-term complications.
• Explain the therapeutic rationale and emerging clinical evidence for calcilytics (e.g., encaleret) in hypoparathyroidism management.
• Apply updated clinical evidence to optimize management, including individualized treatment targets, monitoring strategies, and risk mitigation for renal and skeletaL complications.

Agenda:

Introduction (3 min)
Presentation on “Hypoparathyroidism new developments” (35 min)
Live Q&A from the audience (20 min)
Conclusion and key messages (2 min)

Topic: Bone turnover markers
Organised by the ECTS E-learning action group
Chairs: Dr. med. Dr. rer. nat. Felix von Brackel, Institut für Osteologie und Biomechanik, Hamburg, Germany
Speaker: Prof. Roland Chapurlat, INSERM, France
Date & Time: Thursday, 19 March 2026 from 16.00-17.00hrs CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full members tier after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Agenda:

Introduction by Dr. med. Dr. rer. nat. von Brackel (3 min)
Presentation on “Bone turnover markers” by Prof. Chapurlat (35 min)
Live Q&A from the audience, moderated by Dr. med. Dr. rer. nat. von Brackel (20 min)
Conclusion and key messages by Dr. med. Dr. rer. nat. von Brackel (2 min)

Topic: Achondroplasia adult management
Organised by: ECTS Rare bone diseases action group and ERN BOND
Chair: To be confirmed
Speaker: Svein O. Fredwall, MD, PhD, Medical advisor, National Centre for Rare Diseases, Unit Sunnaas, Norway
Date & Time: Thursday, 12 February 2026 from 16.00-17.00hrs CET
Format: Live Interactive Webinar. On-demand recording to be available for ECTS full tier members after the event

Registration

The live webinar is free and open to everyone with an interest in the field.

Register

Key learning objectives:

• Common medical complications in adults with achondroplasia
• How can we organize care of adults with achondroplasia and what are the potential barriers
• Management beyond medical issues

Agenda:

Introduction (3 min)
Presentation on “Achondroplasia adult management” (35 min)
Live Q&A from the audience (20 min)
Conclusion and key messages (2 min)